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Scientists Dodge FDA To Offer a $1 Million Anti-Aging Treatment in Colombia (medium.com) 145

Would you pay $1 million and fly to South America for a chance to live longer? From a report: Libella Gene Therapeutics, a Kansas-based company that says it is developing a gene therapy that can reverse aging by up to 20 years, is hoping your answer is yes. In an interview with OneZero, the company says it is ready to give an experimental anti-aging therapy to older people at a clinic north of Bogota, Colombia. But that's not all -- it's also charging people $1 million to participate. Scientists and ethicists say the company's experiment is not only dubious but it also raises concerns about how anti-aging treatments should be tested in people. The aim of Libella's therapy is to lengthen a person's telomeres, which sit at the tips of chromosomes like caps on the end of shoelaces. First discovered in the 1970s, telomeres have been linked to aging because they seem to shorten as a person gets older. By delivering a gene called TERT to cells, which in turn makes a telomere-rebuilding enzyme called telomerase, Libella thinks it can prevent, delay, or even reverse aging.

"I know what we're trying to do sounds like science fiction, but I believe it's a science reality," Jeff Mathis, CEO of Libella Gene Therapeutics, tells OneZero. Libella's therapy is based on studies published by American geneticist Ronald DePinho in 2010 and Spanish scientist Maria Blasco in 2012, which found that telomerase gene therapy could reverse signs of aging in mice. While intriguing, many have dismissed the idea of using gene therapy to reverse aging in humans because it would involve a permanent change to a person's DNA, a risk that's hard to justify in someone who's healthy. Behind Libella's technology is Bill Andrews, a molecular biologist who, 20 years ago, led a research group at the Bay Area biotech firm Geron to identify the human telomerase enzyme. He tells OneZero that he developed a telomerase gene therapy and licensed the technology to Libella. "I can't say it's the only cause of aging, but it plays a role in humans," he says about telomere shortening.

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Scientists Dodge FDA To Offer a $1 Million Anti-Aging Treatment in Colombia

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  • They always had an anti-age drug, at least you feel that way.

    But more seriously, if this works, the drug 'wars' are kid's play compared to what will happen then, soon 8 billion craving that drug.

    • Well, I wish them LUCK at this point and hope it is a success.

      I hope by the time I really need it, it has been tested, and maybe more open to the general public for a bit more reasonable price.

      I'll start saving NOW, however for this eventuality!!

      I'd like to be over 100yrs for sure!!!

      • by rtb61 ( 674572 )

        A lot of ageing has to do with damage to your genes over time. A lot trickier to fix that. Think of each cell, containing bundles of genes which define your whole body, all sorts of damage can occur to that DNA which is replicated in the next cell produced, the damage, because it does not affect the actual function of that cell, which is carried over into the next cell produced. That damage accumulates over time, subtly effecting cell function, not so much the more defining DNA but the more background DNA,

    • Re:In Colombia? (Score:5, Interesting)

      by sinij ( 911942 ) on Monday December 09, 2019 @04:01PM (#59502308)
      What would happen to society if we can meaningfully prolong life? Retirement becomes obsolete? Say in 5 years treatment for +20 life at $100K/pop is available? At this point it becomes affordable $650/mo with almost everyone signing up. More so, it buys you 20 more years sitting in your cubicle, posting on /. To pay for life extension treatments.

      Maybe it isn't all that bad after all.
      • I don't think telomere lengthening automatically prevents age-related cognitive decline. So when a rich old coot gets a more youthful body, he will still be too scatterbrained to hold his own in a competitive labor market.

        That is just the very first thing I thought of off the top of my head, and I don't even know if it is true. This *is* all experimental, after all. However, given how outrageously complex the human body is, I expect that reversing this one aspect of aging will not solve nearly enough age

        • Re:In Colombia? (Score:5, Interesting)

          by quantumghost ( 1052586 ) on Monday December 09, 2019 @04:28PM (#59502464) Journal

          I don't think telomere lengthening automatically prevents age-related cognitive decline. So when a rich old coot gets a more youthful body, he will still be too scatterbrained to hold his own in a competitive labor market.

          That is just the very first thing I thought of off the top of my head, and I don't even know if it is true. This *is* all experimental, after all. However, given how outrageously complex the human body is, I expect that reversing this one aspect of aging will not solve nearly enough age-related problems to be worth the million dollars. A "complete youth package" is needed, and we aren't anywhere near such a thing.

          This treatment certainly won't reverse aging, but it could come with a nasty side dish of cancer. [utah.edu]

          • Was just thinking this... if all of one's cells suddenly became able to divide largely unchecked, calling them "cancer" might no longer be figurative.
          • This treatment certainly won't reverse aging, but it could come with a nasty side dish of cancer.

            Which they'll probably have good cures for within the next decade or so.

            If your body is wrecked and this treatment can give you a lot of quality of life back, it has a way better upside than any risk of cancer which hardly matters if you are very old anyway.

            • Re: (Score:2, Informative)

              by sarren1901 ( 5415506 )

              You don't cure cancer though... Also, cancer is not a single disease that infects things. So you would have to cure each and every variant.

              Don't get me wrong, it would be great if we could just inject a patient with something that would shrink tumors and target cancerous cells. It still won't be a cure and you won't likely be getting a vaccine.

              We can't even stop the common cold, good luck with cancer.

              P.S. If this life extension does work, it will only be the super rich that ever get it and no healthcare pla

              • Re: (Score:3, Insightful)

                by ChrisMaple ( 607946 )

                If this life extension does work, it will only be the super rich that ever get it

                Jealousy is really ugly.

                The treatment will also be available to any good chemist who can synthesize the relevant chemicals. It will be available to anyone with the intelligence and will to learn how to synthesize the chemicals. It will also be available to any group of people who hire a good chemist. The chemicals will become available on the black market. And so forth, and so on.

                • There are no "chemicals" involved.
                  It is a "gene therapy" ... perhaps you want to look up the difference and the difference in complexity.

            • Of all the problems that cause aging and death, telomere shortening is probably the least of the problems. Your body naturally produces telomerase to lengthen them, after all.
              • The real problem is that we still don't understand the purpose of the aging mechanism. It is unlikely that is simply the machinery getting old and rusty after all our cells continuously regenerate themselves and even species that can regenerate most of their lost bodies (eg: starfish) still go thru the aging process. Perhaps there are limits to how much regeneration can take place, or perhaps slowing down the metabolism is simply a anti-cancer mechanism to slow down abnormal cell growth due to DNA/RNA damag
                • Re: So what? (Score:5, Insightful)

                  by ChrisMaple ( 607946 ) on Monday December 09, 2019 @08:05PM (#59503154)
                  It is not necessary to understand the "purpose" of aging mechanisms in order to circumvent them.
                  • It might be a good idea to understand the purpose of them, to know if it's worth circumventing them or not.
                    What are the side effects, what else are you also doing?
                • It is unlikely that is simply the machinery getting old and rusty after all our cells continuously regenerate themselves and even species that can regenerate most of their lost bodies (eg: starfish) still go thru the aging process.

                  If you think it's unlikely that we procreate and die, you've apparently missed every lesson on evolution.

                  As we age we incur disease, injury, and genetic mutations. None of those is beneficial to reproduction. Pretty much all species have a period in time when they're the most fertile, and then they drop off after that. Once you've procreated, there's minimal evolutionary benefit in you sticking around.

                  In fact, there's a decided negative: You continue to consume the resources that the young, fertile members

                • (eg: salmon dying off en mass after spawning).
                  That is actually a myth.

                  Many die, because they damage their skin when digging holes into the ground for the eggs. They get infections more easy and are weak and get caught by animals ... but there is no real "mass dying" after spawning.

          • by HiThere ( 15173 )

            True, and I think aging mitochondria may have more to do with the aging of multi-cellular entities that depend on the mitochondria for their energy. There are very good reasons most of the mitochondria genes have been moved to the cell nucleus.

            There's also the question of senescent cells, and what they do the the inter-cellular fluid. Some tests have shown the eliminating senescent cells extends youth. But, of course, you would need to do that before you really needed to do it.

        • Re:In Colombia? (Score:4, Interesting)

          by Immerman ( 2627577 ) on Monday December 09, 2019 @04:41PM (#59502522)

          > I expect that reversing this one aspect of aging will not solve nearly enough age-related problems to be worth the million dollars.

          That depends entirely on who's buying it. For an American making the median wage of $31k, for whom it's 32 years income? Probably not.

          For Bill Gates, who's worth $90 billion? If he can manage a 5% annual return on investment he can make that much in 12 hours. If there aren't any horrible side effects, why *wouldn't* he, or any other truly rich person, go for it? Even if it only reverses some of the symptoms of aging and doesn't actually extend lifespan, that's still a heck of a return for on a few days income. A million bucks isn't even enough to throw a decent party for that crowd, a touch of youth is a way better return on investment.

        • by pr0t0 ( 216378 ) on Monday December 09, 2019 @05:08PM (#59502606)

          ...at the SENS Institute [sens.org] from here. They have been researching ways to reverse aging for decades. Keeping the telomeres from shortening helps only one of the seven known ways that mammals age.

          In short, if you've got $1M burning a hole in your pocket, give it to the SENS Research Foundation. They are FAR more likely to solve this problem.

        • I don't think telomere lengthening automatically prevents age-related cognitive decline. So when a rich old coot gets a more youthful body, he will still be too scatterbrained to hold his own in a competitive labor market.

          Unless you have some degenerative brain disease, age related cognitive decline is NOT a given.

          If you keep an active mind, and keep active physically, there's no reason for you to lose your mind and your sharpness as you age.

          Eat right, keep physical activity and keep your mind active by

          • by HiThere ( 15173 )

            I think you're wrong. But it's my guess that it has more to do with mitochondria becoming less efficient.

            That said, if you want empirical evidence for the decline, go to an old folks home. Try to engage them in conversation about something that requires thought, but which they used to be good at. (I know I'm not as good a programmer as I used to be.) You'll find that even bridge is too thought intensive for most of them.

            • That said, if you want empirical evidence for the decline, go to an old folks home. Try to engage them in conversation about something that requires thought, but which they used to be good at. (I know I'm not as good a programmer as I used to be.) You'll find that even bridge is too thought intensive for most of them.

              That is a minority. A minority is definitely evidence that it is the other way around. In my family we had only one case of dementia ... and she still beat everyone in Rommey.

          • Doing some sports actually keeps you young, even in the brain.

            Some people just "give up" when they get old or something happens like the significant other dies, then they tumble quickly into dementia, albeit having no real reason for it.

      • What would happen to society if we can meaningfully prolong life?

        The average life expectancy for middle-class men in Victorian England was 45 years [www.bl.uk] less if you were a labourer. Today the life expectancy is almost double that.

        We have adapted by people working for longer and by introducing retirement because we can now generally live long enough to acquire enough savings to support ourselves. I suspect this trend will continue - retirement ages will increase and people will work longer but also have more time after they retire.

    • "They always had an anti-age drug, at least you feel that way."

      They have trannies in Colombia too?

      Well hot damn!

    • The cartel will move it when the pot cash goes away after the states make it legal

      • Don't expect the black market to really go away. Government is being way to greedy on taxes and buyers don't give two shits about where its coming from. You look at it, smell it and all seems great. If you are buying from a grower or one of his people you are getting good stuff at a good price and it isn't hard to find those sellers, especially since anyone can legally grow now.

        Maybe sheltered children of millennial's will think that you can only buy weed from a government sanctioned facility. It's dangerou

    • They always had an anti-age drug, at least you feel that way.

      Just don't look down at your mirror.

  • by gweihir ( 88907 )

    Some people will have multiples of $1M more after this, so the treatment at least has some effects.

  • https://www.ncbi.nlm.nih.gov/p... [nih.gov]
    I am no DNA-talkin' guy, but it seems this might hide potential cancerous cells from the body, if the linked article is correct.

    • Sounds to me they want to develop cures which target telomerase activity, but I assume the anti-aging therapy doesn't cause continuous production. If you can turn it on/off then the anti-cancer therapies would work again when off.

  • What Elizabeth Holmes has been up to lately.
  • science fiction (Score:5, Interesting)

    by lkcl ( 517947 ) <lkcl@lkcl.net> on Monday December 09, 2019 @04:14PM (#59502378) Homepage

    I know what we're trying to do sounds like science fiction

    altered carbon. by richard morgan. greg bear's books. ken macleod's books. many others. they all make it clear that once anti-ageing treatments like this are available for vast sums of money, you end up with an "elite" class, far beyond the reach of law, who consider the rest of humanity to be nothing more than "cattle".

    peter f hamilton's books also make it clear that there's a problem of having too *much* life-experience. once you are 1,500 years old, you have 20 *lifetimes* worth of knowledge in your head. very few people can cope with that: iain m banks "culture" series, which allows peoples' consciousness to be transferred to alternative bodies (even machines) and also stored, explores some possibilities: people going into "offline storage" for millenia, only to be woken if certain events (usually spectacular) occur.

    anti-ageing sounds great in theory: in practice it can turn our entire planet into a dsytopian nightmare for everyone: both those who become pathologically and criminally "elite", and those left behind. the film Elysium explores and expresses this best.

    • Re:science fiction (Score:5, Insightful)

      by Dutch Gun ( 899105 ) on Monday December 09, 2019 @04:54PM (#59502576)

      anti-ageing sounds great in theory: in practice...

      You're saying "in practice", when no one has ever done this before, and we literally have nothing but theory and speculation. I'd be careful about reading too much "truth" into what science fiction writers speculate. They're first and foremost trying to spin a good yarn, and for that they require conflict, which makes dystopian futures more attractive than utopian ones.

    • Bad side effects. I can think of lots of scifi with that. Where some odd alternative medicine goes bad.

      Also they can cover up deaths an old man died doing an alternative medicine just like steve jobs.

    • Re: (Score:3, Insightful)

      by Necron69 ( 35644 )

      Oh, please. 'Elysium' was nothing but a pile of absurdities upon more absurdities. It is merely one of a vast number of dystopian future stories that has nothing to say except the simplistic 'rich == evil' message. Science fiction of the type you are describing is nothing more than speculation about the future. It doesn't 'make clear' anything at all.

      - Necron69

      • by ixneme ( 1838374 )

        Science fiction of the type you are describing is nothing more than speculation about the future.

        That would be the definition of science fiction, would it not?

      • Re: (Score:2, Informative)

        by AmiMoJo ( 196126 )

        rich == evil

        More like unrestrained inequality == evil. When you look at times in history where the majority rose up and murdered the rich it was when inequality got too bad. That's why today the rich are careful to make the prospect of a revolution feel just slightly worse than continuing to serve them.

        • When you look at times in history where the majority rose up and murdered the rich it was when inequality got too bad.
          And the poor ones starved ... in ancient rome the poor ones got free bread and free entry to circus and the bathes. In middle ages the poor ones were treated like cattle ... and in the industrialization age like work slaves, who got money, just enough to drink and stay poor.

      • Speculation = thought experiment = Gedankenexperiment.

        It can make many things clear. And clear definitely is: if we had immortal Trumps, Gates, Ellisons, or for that matter Kims, Xi Jinping's, or any of the still existing dictators, it can't be so hard to grasp that that wold be a very bad idea.

    • anti-ageing sounds great in theory: in practice it can turn our entire planet into a dsytopian nightmare for everyone: both those who become pathologically and criminally "elite", and those left behind. the film Elysium explores and expresses this best.

      You're basing that statement of fact on nothing more than some storytellers speculating. Nice one.

    • [many authors wrote stories on the premise that] once anti-ageing treatments [] are available for vast sums of money, you end up with an "elite" class, far beyond the reach of law, who consider the rest of humanity to be nothing more than "cattle".

      So?

      We ALREADY have small elite classes, far beyond the reach of law, who consider the rest of humanity to be nothing more than "cattle".

      This just means that they can spend abunch of their money being first adopters of an experimental anti-aging treatment to try to

    • Re:science fiction (Score:5, Insightful)

      by Kjella ( 173770 ) on Monday December 09, 2019 @05:51PM (#59502734) Homepage

      If we were dogs we would think a dog's lifespan is a lifetime. If I take a step back I feel like life is incredibly short, especially considering how aging drives you through many phases in life. For many it's like you spend ~20 years to become an adult, then ~10 to party, ~20 to raise kids, ~15 to reach retirement, ~15 sunset years then ~15 in a nursing home if you live that long. If you could add like a hundred "free" years as an healthy adult to that, hell yeah I'd take it. I appreciate all the help the health care system has given my parents as illness caught up with them but to be honest, when they were 70 and healthy it was definitively with an unspoken "for their age" and not like they were 20 anymore.

      Most of those who lose the will to live lose it because their body is failing them. Fading vision, fading hearing, fading taste buds, losing teeth, using a stroller and full of aches and pains, they're weary and tired and it's only going downhill, you fix one problem and they get two new ones. To act like there's nothing wrong with people that are "only" aging is an insult to all elderly because the truth is clear as day, nobody would choose to age if they could help it. Which is not to say we should give up on making the 80yo become 90yo or the 90yo to become 100yo but we should seriously start experimenting on how to not let the body deteriorate like that in the first place.

      • Most people actually chose to age.

        For many people bone and joint problems , especially tooth problems, are completely avoidable. But they don't care. They don't _behave_ healthy. How many people do you see bowing down to pick up a heavy bag instead of simply bending the knees? How many do you see carrying a heavy bag and still taking two stairs on a stair case?

        People are so lazy with her body they don't even shift into an easy gear on bicycle but stay in the heavy/high gear as to impress someone who is not

    • anti-ageing sounds great in theory: in practice it can turn our entire planet into a dsytopian nightmare for everyone: both those who become pathologically and criminally "elite", and those left behind. the film Elysium explores and expresses this best.

      Please sign me up for the "elite" group then.

      I"m good with all that you described if I could live that long.

    • I'm re-reading KSR's Mars trilogy right now, and it makes another interesting point. What happens to your brain when you keep stuffing things into it? What if the longevity treatments aren't enough? They wind up with a brain plasticity treatment as well, and people who don't get it fail. But people who do get it change. Fingers crossed, I guess, not that I'm likely to be around to find out and thus have to care.

    • by HiThere ( 15173 )

      Don't take science fiction too seriously.

      OTOH, it's worth noting that most people become less ethical as the age. Not more competent beyond a certain point. The catch-phrase from the 1960's of "never trust anyone over 30" did have a certain amount of validity, and still does, though there's really not the sharp cut-off that that implies, and it's truth is statistical in nature.

      That said, those who seek power tend to be untrustworthy at any age. But again this truth is statistical in nature. Still, it's

    • by lazarus ( 2879 )

      After a while you realize that power and wealth is not as desirable as they once were. If you're looking at forever there is NO chance that you couldn't make it to the top, so the thrill is gone. You're already "comfortable". Hell, you don't even have to worry about dying. Sci-fi authors imagine that it all gets cyberpunk and shit but the reality is you just stop caring about pretty much anything. That's the real difficulty. Consuming resources but not producing anything of value in return.

      I get it.

    • by Tom ( 822 )

      there's a problem of having too *much* life-experience. once you are 1,500 years old, you have 20 *lifetimes* worth of knowledge in your head. very few people can cope with that

      It's not the knowledge. Knowledge merely accumulates and that's fine.

      It's the shit that happens in life. That also accumulates. The human mind didn't evolve to cope with unlimited amount of pain and loss. It's tough to let go, and few of us ever manage to let go completely. Something stays with you. How many loved ones can you lose before it just drives you mad? How many injustices can you witness or experience? How much personal suffering can you stand? Even if you're good at coping, if only a small fracti

      • It's tough to let go, and few of us ever manage to let go completely.
        Because people are brought up in the *wrong* religious context.

        But in general I agree. I think that is one of the main reasons for dementia. People getting caught in their thought - Karussell, and not being able to get out again.

  • They're big fans of PT Barnum's dictum "there's a sucker born every minute". The trick is to find suckers who still have money, but I'm thinking they've hit on an effective solution to that.

  • by DavenH ( 1065780 ) on Monday December 09, 2019 @04:27PM (#59502460)

    I doubt that this treatment will accomplish anything. Scientists have cloned several different species from an aged animal's DNA, and the result, nowadays, is a healthy clone without the diseases and ravages of old age of the original specimen. So aging clearly isn't a result of the digital information being distorted or lost. Telomerase is also a natural enzyme that the cell already regulates.

    David Sinclair's theory is that aging is a result not of corruption of the digital information, but of accumulation of noise in the analogue information in the epigenome (the chemistry environment interacting with the genes). Cells continuously split, digitally replicating the genes, but the chemical soup within the cell is also passed along, yet seldom gets renewed from source. This means that while a cell might be young, its epigenome can be very old and "noisy". So, $1m or not, they're likely barking up the wrong tree.

    (I have no association to Dr Sinclair)

    • Comment removed based on user account deletion
    • by HiThere ( 15173 )

      Sorry, but your "proof" doesn't work, because during the cloning process they eliminate those cell lines that aren't successful enough. This is analogous to the germ-line cells that are not only limited in their number of divisions, but also have an extremely high mortality in early embryogenesis. The somatic cells have reproduced more often, but there are more of them in the culture to select from.

    • Last I looked, and it's been a while, clones themselves were initially healthy but often suffered early onset of age-related problems, but the offspring of those clones were perfectly normal. As such, the benefits of cloning have been in cases like replicating a prize bull or stud horse in order to keep seeding high-value offspring.

      Has there been some change on that front?

  • by Impy the Impiuos Imp ( 442658 ) on Monday December 09, 2019 @04:32PM (#59502488) Journal

    a permanent change to a person's DNA, a risk that's hard to justify in someone who's healthy

    When the alternative is death, how do you define risk?

    Snake Oil is a problem, but delaying possible incalculable benefit could be mass murderous.

    A few dozens or hundreds may get no benefit, or be worse off. But if it works, the same screaming of the joys of the FDA will switch to screaming how unfair it is to be so expensive that only the rich can afford it.

    I make no claim as to its validity; indeed it sounds too good to be true. Just that the risk vs. reward is way out of whack by people acting on "our behalf."

  • by twocows ( 1216842 ) on Monday December 09, 2019 @04:36PM (#59502512)
    There's a guy on the street who'll sell me snake oil that gives me a chance to live forever for bus money. Why the hell would I waste the million dollars that I don't have on an equally dubious and unproven treatment?

    If their treatment actually works, eventually someone will figure out how to do it at scale and someone else will figure out how to make a knock-off version. At that point, prices will become far more reasonable. Also, they'll probably have worked out (or at least established) any problems it might cause by then.

    This shit's like Kickstarter. Only idiots and the rich pay absurd amounts of money to have a chance at alpha testing a product. If it's any good, it'll take off on its own and you can buy in after things have settled down.
    • Since everybody knows the $10 solution has to be too good to be true it stands to reason the $1M solution can't miss.

      I guess. The fact that there's an idiot born every second means they've managed to cover a lot of the problem space so most anything makes sense now.

    • by mark-t ( 151149 )
      If it's any good, the only people who will ever have access to it are the absurdly rich anyways, so pricing it out of reach of the average person (for something that is still being tested anyways) is probably not a bad idea.
      • One of the best available anti-aging techniques is caloric restriction. Please explain how you have to be absurdly rich to eat less.
        • by mark-t ( 151149 )

          You don't have to be absurdly rich to eat less. You need to be absurdly rich to have access to practical in-place gene manipulation that literally reverses aging by lengthening telomeres.

          That is, of course, assuming that the therapy being discussed here even actually works.

          If it doesn't, it's just another snake oil, and I honestly won't be surprised.

  • Pay to test with an quack doctor?? in an clinic?

    Also for 1M they can do better then an clinic over seas.

    Worse Case they take your 1M and leave you sick in some unknown clinic

  • now we have to worry about a bunch of rich coke snortin zombies who can now live 20% longer.
  • Comment removed based on user account deletion
  • My ancestors have always had a wonder drug that keeps you forever young....blablabla, send me money.

  • It is yet another ploy by the intellectual property cartel to keep extending the duration of copyright.

    They realize that now that they got it to life + 70, there may be a significant pushback if they keep trying to increase the "70" part of the equation, so they are working on increasing the "life" part, deviously employing the commutative property of addition to achieve their nefarious goals.

    Sneaky bastards!

  • Sure, once it is proven to work, I'll figure out how to get that kind of money and I'd happily spend it on 20 more years. That's about the time it takes to accumulate that money, and treatments tend to become cheaper with time, so by the 2nd time I'll be in the plus.

    Problem: It's not been proven to work, yet. A million for a chance? Without an indication of the odds?

  • I'm sure they're not decamping to some unregulated backwater outside the jurisdiction of the FDA because their treatment doesn't work, and/or is potentially harmful, and/or is unethical in some way. No sirree.
  • Would be to selectively choose the best cells in someone's body and use crispr or something like it to repair any cells that have damage/deviated from that 'best' image. Otherwise you are really just prolonging the life of old messed up cells. That is not going to reverse anything it will just slow down further aging.

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