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ALS Ice Bucket Challenge Funding Leads To New Genetic Findings ( 33

An anonymous reader writes: Researchers are crediting the ALS Ice Bucket Challenge, a fundraiser for amyotrophic lateral sclerosis that went viral in 2014, for funding a new study that has possibly identified a common gene that contributes to the nervous system disease. Yahoo reports via Good Morning America: "In a study published in The Nature Genetics Journal, researchers from various institutions, including the University of Massachusetts Medical School and the University Medical Center Utrecht, identified the gene NEK1 as a common gene that could have an impact on who develops the disease. Variants of the gene appear to lead to increased risk of developing ALS, according to preliminary findings. Researchers in 11 countries studied 1,000 families in which a family member developed ALS and conducted a genome-wide search for any signs that a gene could be leading to increased ALS risk. After identifying the NEK1 gene, they also analyzed 13,000 individuals who had developed ALS despite no family history and found they had variants in that same gene, again linking that gene with increased ALS risk. Starting in the summer of 2014, the ALS Ice Bucket Challenge led to 17 million videos made and $220 million raised, according to the ALS Association -- $115 million of which went to the association."
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ALS Ice Bucket Challenge Funding Leads To New Genetic Findings

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  • Good cause & a fun way to raise money. Both my wife & I did. She sprang up on her feet a split second after I started to dump the ice water on her. One of the funniest things I've seen! :-D
  • Yahoo reports via Good Morning America: "In a study published in The Nature Genetics Journal,

    How about a quote directly from those involved in the study. I've seen Yahoo and I've watched GMA and who knows how many time telephone got screwed up in that news path.

  • by Timothy2.0 ( 4610515 ) on Wednesday July 27, 2016 @10:53PM (#52596261)
    Project MinE started a year before the Ice Bucket Challenge and the money provided to the project that was the direct result of the challenge is a fraction of what it's raised outside of the project.

    To suggest the Ice Bucket Challenge funding was directly responsible for the results completely ignores how the funding of these kind of scientific endeavours really works.
    • It also ignores the fact that the Ice Bucket Challenge missed the point and created blind slacktivism more than anything else.

      Remember it was donate OR get ice bucketed. All the youtube idiots did it wrong. One of the few who did it right was Patrick Stewart on his ice bucket challenge video.

    • A lot of things are observable from the Ice Bucket Challenge.

      First: ALS affects a tiny, tiny fraction of the population. 36,000 people worldwide. Diverting resources to ALS diverts those resources away from efforts which affect hundreds of millions of people. That means you get to pat your back for pulling bread from 10,000 starving childrens's mouths to feed ONE starving child somewhere a few miles away instead. (Okay, that's not the right metaphor; it's more like you diverted the truck to another s

      • by Anonymous Coward

        A lot of things are observable from your post.

        First: You assume that every dollar donated to ALS was therefore not donated to some other charity. This is quite a silly assumption.

        Second: You don't seem to understand how progress is made. You see, someone finds some thing that not earth shattering in and of itself, and adds that to other small things discovered by other people. This adds up to big things, like the computer you are using (and almost every other thing in your life). If we ignored all the s

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