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Science

In a First, Brain Implant Lets Man With Complete Paralysis Spell Out Thoughts (science.org) 27

sciencehabit writes: In its final stages, the neurological disease amyotrophic lateral sclerosis (ALS) can bring extreme isolation. People lose control of their muscles, and communication may become impossible. But with the help of an implanted device that reads his brain signals, a man in this "complete" locked-in state could select letters and form sentences, researchers report this week. "People have really doubted whether this was even feasible," says Mariska Vansteensel, a brain-computer interface researcher at the University Medical Center Utrecht who was not involved in the study, published in Nature Communications. If the new spelling system proves reliable for all people who are completely locked in -- and if it can be made more efficient and affordable -- it might allow thousands of people to reconnect to their families and care teams, says Reinhold Scherer, a neural engineer at the University of Essex.
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In a First, Brain Implant Lets Man With Complete Paralysis Spell Out Thoughts

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  • I wonder how you request (or agree to) this kind of intervention if you are completely paralyzed. Can they make a temporary connection to get consent before the full surgery ?
    • by fazig ( 2909523 )
      The article mentions ALS, which means the person in question wasn't always completely paralyzed.

      I suppose they probably consented to some stuff for the cases where they no longer can give consent, similar to how people may sign a living will.
    • It's actually in the article, which even has a link to the actual open-access paper (so we can all play armchair scientists). Basically, the patient gave permission before he became completely paralyzed, when he could still move his eyes.
    • by quenda ( 644621 )

      I wonder how you request (or agree to) this kind of intervention if you are completely paralyzed.

      His first words are: "P .. L .. E .. A .. S .. E .. K .. I .. L .. L .. M ..." before the connection was lost.

  • In some jurisdictions, there wouldn't be a problem, but what will they do when some person in the last stages of ALS says, "Let me die", or "Can you at least give me some really, really good hallucinogens to help pass the time?"

    • I know someone, through friends, who was diagnosed with ALS and given three years to live. I suspect some of you have heard of him. He remained positive and supported by all his friends, and killed himself (illegally) a year later. I suspect it's fairly common. I had a gym teacher it happened to too, who declined in just a few years, and died naturally, as far as I know. It sounds completely miserable and heart-breaking, and progresses so quickly.

    • Reuters: In a world first, a completely paralysed man used a brain interface to spell out the first message ever sent purely by brainwaves to the outside world. His message was "THIS SUCKS. SEND HEROIN. NOW!"

    • In some jurisdictions, there wouldn't be a problem, but what will they do when some person in the last stages of ALS says, "Let me die", or "Can you at least give me some really, really good hallucinogens to help pass the time?"

      Actually it's the euthanasists that have most problems with this. Because I bet that before the guy was hooked up to the implant you'd be screaming to "just pull the plug on him and let him die", and now that we have established means of communication oh golly gee surprise, surprise, turns out that he doesn't actually want that. And that's exactly what happens most (yes, not *always* but most) of the time in similar scenarios, even in people who signed DNR previously - turns out that the decision you make w

  • "Quiet! He is aware and is thinking something to us!"

    "D o e s t h e n u r s e h a v e s o f t h a n d s ?"

  • She still had eye movement at the time, but trust me, this is huge. Sure it's a baby step, but we have to start somewhere.

  • Total paralysis is kind of my definition of hell. Best you can do is sit there and watch movies.

    • by dohzer ( 867770 )

      When I read the headline, the first thing I thought of was the scene from Aliens where they wake the woman on the wall.
      "Please... kill me."

  • ALS is one of the most horrible diseases, and this invention will make life a bit better for the poor souls who have it. I would probably ask for assisted suicide before it comes to that though.
    • by meander ( 178059 )

      I have worked with a few of these poor bastards.

      Brain in a box.

      A minority want to live at all costs. This device will help them.

      Many suicided while they still could. While in a nursing home in your wheelchair, you can call a taxi that will take you to a local pier. You have just enough strength to wheel your chair to a deep spot off the pier and go over the edge. A few miserable minutes, then peace. This, and all too many similar situations, has haunted me for years. You can't get euthanasia in many places,

  • A shameless plug.

    Being able to choose between "yes" and "no" answers allows one to communicate. That approach can be adapted to depth psychology, where you can seek to communicate with autonomous parts of your mind, who can share with you their emotions that can be used as "yes" or "no" signals. After that it's fairly easy to establish some communication.

    Here's a prototype implementation [github.com].

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