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Biden Unveils Open-Access Database To Advance Cancer Research (go.com) 42

An anonymous reader quotes a report from ABC News: Vice President Joe Biden unveiled a public database for clinical data on cancer on Monday that aims to help researchers and doctors better tailor new treatments to individuals. Overseen by the National Cancer Institute, the Genomic Data Commons starts with genomic and clinical data for 12,000 patients. The system is designed to increase sharing of information about the gene sequences of tumors and how patients with those tumors responded to specific treatments. "The information is scattered among different government and academic repositories. Most of it is out of the reach of scientists," Biden said. "We're bringing it into one space." Though easily searchable, the database includes protections for privacy and security, Biden said. He urged cancer experts gathered in Chicago to "upload your raw genomic data" to the system for use by fellow researchers. "All of you know it's the right thing to do," Biden said. "It's the quickest way for us to move forward. And it's not technically hard for us to do it." You can read the key features of the GDC via The White House here.
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Biden Unveils Open-Access Database To Advance Cancer Research

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  • What? Oh, never mind.

  • Oh no, here come all the "cannabis cures cancer" nutcases
    • Oh no, here come all the "cannabis cures cancer" nutcases

      Cannabis doesn't directly cure cancer, but it can suppress the severe nausea caused by many chemotherapy drugs, which means more patients complete the course, which means more of them recover and survive.

      So far, the only downsides to cannabis legalization have been prison guard layoffs, and the extra burden on politicians that have to figure out how to spend all the money from dope sales taxes.

      • So far, the only downsides to cannabis legalization have been prison guard layoffs,

        Well, there are concerns about edibles and the dosages that people consume without realizing it. And turning "candy" into "drugs", thus creating issues for young people. (Kinda like the old candy cigarettes that aren't sold much anymore.)

      • >So far, the only downsides to cannabis legalization have been prison guard layoffs, and the extra burden on politicians that have to figure out how to spend all the money from dope sales taxes.

        So the obvious solution is to use the dope sales taxes to fund employing the former prison guards in public works projects ?

  • by Anonymous Coward

    .. for releasing my private genomic data? My samples were supposed to be protected!

  • Your Honorable Mr. Biden,

    We would like to thank you for your donation to our DNA database project! This has enabled us to refute claims, that your DNA could be found in the mouths of Oxford University pigs.

    Unfortunately, further analysis of your DNA data has proved that you are, in fact, John Wilkes Booth, the guy who shot Abraham Lincoln, or somebody. Of course, we would all like to see a peaceful solution to this problem. But if you want to go down in a hail of bullets . . . I can recommend a Vodafone

  • Insert here routine complaint that the federal government has no delegated power to fund or perform medical research.

    • Re:as usual (Score:4, Insightful)

      by Obfuscant ( 592200 ) on Monday June 06, 2016 @08:55PM (#52263911)
      Insert here "what could possibly go wrong with a single, national government database of DNA sequences ..."? "C'mon, you know it's the right thing to do..."
      • by fche ( 36607 )

        yeah, that too!

      • The right would find a way to make pro-cancer sound like "freedom"... who would have thought.

      • It's not clear that they are talking about full DNA sequences. They will likely follow the Massachusetts rule of reporting only the differences between a cancer sample and the patients normal tissue. It's true that there are potentially important interactions between the mutations in cancer and the patients normal genetic variants but the most important thing is to know what changes caused the transformation to cancer. With a few exceptions, like BRCA1 and BRCA2, it's the mutations unique to the cancer
  • Classy DNA (Score:5, Funny)

    by PopeRatzo ( 965947 ) on Monday June 06, 2016 @10:22PM (#52264407) Journal

    When I'm president, we're going to have magnificent databases. The best databases, not loser databases like Biden's. Just tremendous, tremendous databases. We'll make Latvia pay for it, and there won't be any Mexican DNA in that database either, until we can figure out what's going on. We're going to have DNA that'll make your head spin.

  • Seems like we just went through a widely-applauded act to block access to patient records in the name of privacy (HIPAA). National database of cancer patients -- what could possibly go wrong? (hint, the 'national database' of government employees' and contractors' clearance backgrounds, including financial information, criminal history if any, credit cards, etc. got breached last year, courtesy of Office of Personnel Management and their antiquated security measures). I think patient privacy was far bet

  • by silentcoder ( 1241496 ) on Tuesday June 07, 2016 @03:13AM (#52265373)

    rightwingers rapidly assemble around the opposite - even for ideas they originally proposed.

    Mmm... *grabs popcorn*, I am looking forward to watching the republicans become pro-cancer. I can't imagine what the arguments will look like but I bet they'll include the phrase "will of God" at least 50 times.

    • And I found it... the horror of the federal government having a database of DNA... because spying on the dying is totally something they would care about, and somehow ignoring the fact that a federal database of DNA has been around for decades that IS actually used for law enforcement purposes and administered by the FBI.
      Oh but that once can't possibly be abused right, seeing as it was created under a republican administration. ... except that there was that major scandal last year when it turns out FBI tec

    • Comment removed based on user account deletion
      • Why am I an asshole ? I support this idea. 8 supported it even though I had no knowledge of Biden's son dying of cancer ?
        I just know what the rabid right has been like and they already proved me right. The thread is filled with people declaring the horror of letting the federal government have a DNA database. Nevermind that they have had one for years.

  • Actually, what might be more important than the database itself is the process of enforcing standards for how to describe a mutation. There is actually a standard set by the Human Genome Variation Society (HGVS) but it's not followed widely. In journal articles, different authors use different notation for the same mutation and, worse, often don't provide an complete specification. For example, it's common practice to report a mutation in terms of how it changes the protein which it codes for. However,

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