Continued Rise In Autism Diagnoses Puzzles Researchers, Galvanizes Advocates 558
sciencehabit (1205606) writes "The Centers for Disease Control and Prevention (CDC) has raised eyebrows, and concern among current and prospective parents, with a new report documenting that the rate of autism spectrum disorder diagnosis in the United States jumped 30% between 2008 and 2010, from one in 88 to one in 68 children. CDC officials don't know, however, whether the startling increase is due to skyrocketing rates of the disorder or more sensitive screening, or a combination of both."
Medicalizing Normality (Score:5, Insightful)
'Nuff Said
Re:Medicalizing Normality (Score:5, Interesting)
It's just a repeat of the "ADD" craze the medical industry was in in the 80's and 90's to make doctors feel needed and important....
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Re:Medicalizing Normality (Score:5, Informative)
My youngest son has high-functioning autism with pdd. From my point of view, you're both right and wrong (in that extremely insensitive way only an ignorant person can be.) So let me reflect.
You're right - there is a 'craze'. It involves things like throwing Risperdal and/or non-gluten-casein diets at a problem that science can't even define, let alone treat. Jenny McArthy's book, all that crap. It is crap, you're right about that. It is the same as all infant science - as much voodoo as fact. But that goes for a lot of medicine these days, so let's not judge too harshly.
You're wrong (in a fuck-you-generating way) that this is 'just' a craze. My son is a very different type of human. In fact this is how we break in new care givers: "Imagine a space craft landed and dropped off one of their children. Everything he does is normal on his home planet, and most of the things we do are weird and strange to him. That's Scott."
He can't really relate to people in a natural way. Eye contact is poison. He mixes up the concepts of 'love' and 'need' (he'll be the first to tell you he 'loves to fart', for example.) He'll probably never have a 'normal job', but could work in a specialized environment, etc.
There are upsides, too. Some of them are basically superpowers. For example, if he saw a calendar at any time during his life, he remembers it forever. So you can ask him, 'what was the Wednesday before April 7th, 2006' and he'll tell you. I have no idea how useful this would be to anyone, but it's still pretty remarkable. His circadian rhythms are pretty much infallible. Stuff like that.
In short, he's unique enough to have a 'thing' that deserves a name. The existence of the 'craze' doesn't invalidate the 'thing'.
It isn't all bad
Re:Medicalizing Normality (Score:5, Insightful)
Have you ever considered that perhaps Autism is an evolution of humans, rather than a thing which will "fuck" us?
LMAO, you don't know how evolution works, do you? What possible advantage could autism provide, when it renders most afflicted persons unsociable and awkward and therefore highly unlikely to pass on their genes?
Re:Medicalizing Normality (Score:5, Interesting)
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Over-simplification ftw! (Score:4, Informative)
LMAO, you don't know how evolution works, do you? What possible advantage could autism provide, when it renders most afflicted persons unsociable and awkward and therefore highly unlikely to pass on their genes?
LMAO, you don't know how evolution works, do you? What possible advantage could sickle-cell anemia provide [wikipedia.org], when it renders most afflicted persons breathless and weak and prematurely dead and therefore highly unlikely to pass on their genes? The real story here is probably more complicated than this, but it's a *hell* of a lot more complicated than that.
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Maybe mild autism has been associated with higher wages ever since industrialization? E.g. being a factory worker who was better adjusted to city life, earning more than your peasant agrarian non-autistics? Continuing up to today where lawyers and software developers get higher salaries? That might correlate with slightly higher reproductive success. Just a guess.
(Factory worker, lawyer and programmer are roles where limited empathy wouldn't be a hindrance, and "restricted and repetitive patterns of behavio
Re:Medicalizing Normality (Score:5, Insightful)
You've never actually met an autistic person have you? It is NOT an advantage in 99.99999% of cases, A few people with mild cases can live normal lives, but this is the exception. Most autistic people cannot live on their own and require close supervision 24x7. Most people, even saintly social workers, find it extremely unrewarding, frustrating, and generally unbearable working with autistic people.
Autism is a horrible affliction.
Ironic Diagnoses (Score:3)
My guess is that this 30% increase aren't more of the stereotypical autistics who are unable to care for themselves, it's identifying people who would benefit from behavioral therapy. Thus, as we better understand and better understand how to help those with it, your statistic will become less and less true. With respect to individuals who lead a very difficult life due family members or friends who have severe autism, autism itself isn't tragic, certain cases of autism are tragic. My condolences if you kno
Re:Medicalizing Normality (Score:5, Interesting)
My son is autistic too.
With the right combination of Physical Therapy, Speech therapy, and Occupation Therapy over the last 7 years, he is almost indistinguishable from a "normal" person. He is not that much different from your average geeky kid, except his short term memory is like a database with broken indexing: it is all there, but he has to really work to get it out. If you supply a prompt, the data floods back out of him at a surprising rate.
So far, his only real social setback is he has NO IDEA that all the girls around him adore him. Kid is putting out some sort of weapons grade pheromone or something.
He came home the other day with some cool looking knotting thing going on. Asked him about it, turns out the girl who is the top of the social pecking order in his class saw his shoe untied. She offered to tie it for him at lunch, spent half of lunch break redoing the lacing.
I don't think he will have any problems passing on his genes.
Re:Medicalizing Normality (Score:4, Interesting)
Don't be confused by the nice guys girls like to spend their time with, and the arseholes they end up fucking in the back alley.
Re:Medicalizing Normality (Score:4, Insightful)
Who buys the phone and installs the app?
He does. Before he moves out he uses a computer his parents bought for him, to buy the phone. Or the parents give him the phone. He then pays for the food and rent via a work-from-home job that requires little/no human interaction. Maybe programming apps to help people like himself. Maybe he needs some help marketing them, maybe his parents or a sibling or someone he's never met does that part.
Sure, he can't live on his own if he's just thrown out into the world right after he's born. But NO ONE CAN. EVERYONE has to be helped out and handed things by their parents and/or society to start out. But once the correct tools are given, they can live on their own. For some people, the right tools are as simple public schooling and directions to the employment office. Some people also need a wheelchair. Some people need different tools entirely.
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You wouldn't function in a cavemen society either.
Re:Medicalizing Normality (Score:4, Insightful)
Read the comments to find out how long it'd be before one of these people showed up.
Science/medicine freely admits it doesn't have all the answers (at least that's the ideal). The only evidence that vaccines cause autism is one study [wikipedia.org] done in 1998 that was so horribly flawed that not only did The Lancet issue a full retraction in 2010, the doctor who led the group that authored the paper lost his medical license. The sample size was 12 children, nowhere near the size required to generate statistically significant results. In layman's terms, it was complete and utter bullshit promoted by someone who had undeclared conflicts of interest, and got drummed out of the medical profession for his actions. (Insanely enough, the paper itself never claimed a link between autism and the MMR vaccine, yet that's how the media/idiots took it.)
Of course, you don't care about any of that. You want to blame something other than random chance for your child being autistic. There is no credible scientific evidence that you people will listen to or consider; you just toss it out as a giant conspiracy, because chemtrails or lizard people or something.
Ask yourself what would make you abandon your belief that the MMR vaccine is linked to autism. If the answer is "nothing", you're a grade-A moronic zealot who has decided to believe in a simple answer instead of thinking. I am sorry your son is autistic. What's your excuse?
Re:Medicalizing Normality (Score:4, Insightful)
That's not what I was saying at all. I was saying that the study was such junk that he lost his medical license. Had it merely been the media misinterpreting a paper, that would not have happened; if journals retracted every study that the media misinterpreted, there'd be no point in their continued existence.
I wasn't tossing anyone in with the lizard people. I was using that as an example of a totally unsupported hysterical conspiracy theory.
I don't think anything is being dismissed as not possible. I think things are being dismissed because there isn't a shred of credible evidence to support them. There is no credible evidence that vaccines/food supplies/whatever cause autism. (You could say that there's no credible evidence that they DON'T cause autism, but then you'd be an idiot, as you can't prove a negative.)
It's far more likely that there isn't any more autism than there used to be, it's just more diagnosed now than it had been in the past.
And when there are double-blind, peer-reviewed studies that stand up to scrutiny on those matters, then talk to me. Until then, the plural of anecdote is still not data.
really? really. (Score:5, Insightful)
about a century and a half ago, nobody ever heard about autism.
you wouldn't be diagnosed an autist, but simply made to stand in a corner of the class with a dunce cap a lot.
i can picture the headlines.
autism discovered!
sudden surge in number of autists baffles scientists!
as we get better at diagnosing conditions like this, naturally there will be a rise in the number of positive diagnoses.
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about a century and a half ago, nobody ever heard about autism. you wouldn't be diagnosed an autist, but simply made to stand in a corner of the class with a dunce cap a lot.
Another couple of centuries before that they would have been called hermits and generally venerated.
Re:really? really. (Score:5, Insightful)
Plus a number of parents that can't accept that their precious offspring simply may be plain stupid or lazy as any other kid.
There HAS to be a reason and there HAS to be someone or something responsible for Li'l Joe standing in the corner with the dunce cap so often.
And I guess that still leaves a bit of wiggle room for an actual increase of people ending up somewhere in the autistic spectrum.
Re:really? really. (Score:5, Informative)
Re:really? really. (Score:5, Interesting)
^^^ This is exactly true. The problem that many on the autistic spectrum face is that they can't figure out how to communicate their thoughts with neurotypical people or they get overwhelmed by sensory input. In the case of the latter, imagine trying to give a speech while five speakers play different genres of music turned up to 11, with spotlights aimed right at your eyes, and a team of people poking you with sticks. Now imagine that there was someone in the audience for whom the music and lights appeared normal. How articulate would you appear to this person? Probably not very. Autistic people get written off as "dumb" when the real description is often "has a hard time communicating."
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And I'd say your description of the communication issues the autistic face is a definite disadvantage. The intelligence boost in 50% of mild cases isn't worth it.
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Studies have shown that beginning therapy at a young age can help many people with autism. It's not a cure, but it helps them cope with the neurotypical world. I like to think of it as everyone else running the "social rules application" natively while those on the autism spectrum need to emulate it. Anyone who has used an emulator will attest that these always run slower and use more processor power than native applications. This leads to the person with autism being overwhelmed and needing to decompre
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There could be something to that. Imagine a sighted person being distracted by a painfully bright flashing light in a room full of blind people.
Conflating (Score:5, Insightful)
Beware of conflating autism with autism spectrum disorders and asperger's syndrome. Classical, pre-2000s autism isn't a faddish behavioural disorder, it's the kind of debilitating condition that can require life-long professional care.
Re:really? really. (Score:5, Funny)
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I blame Beta.
Re:really? really. (Score:5, Interesting)
Actually, as someone likely on the autism spectrum* - albeit high functioning, I find it easier to communicate via social networking (and online in general) than face-to-face. With face-to-face, there are problems like needing to think of the appropriate thing to say in the appropriate manner, keeping appropriate levels of eye contact, getting the tone right, blocking out distractions like other conversations, and doing all of this on-the-fly in a short enough period of time. Often I have exactly the right words in my head, but they come out of my mouth all wrong (if they come out at all). With online communication, I can type out my reply, correct it five times to hone my message before sending it. (Like I've done with this one.) If anything, I've found that online communication has helped me with face-to-face communication, not "increased my autism."
* My son was diagnosed with Asperger's Syndrome and everything that I read seems to describe me as well. I could seek a diagnosis but it would spend money we don't have and wouldn't help my son out. So I'm comfortable being "likely" instead of "definitely."
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Wow, I could have written that post. I'm not alone!!!
Re:really? really. (Score:5, Insightful)
You realize that 'normal' people invariably have symptoms or findings found in syndromes or diseases. The discovery of which prompts the 'second year medical student syndrome'. At least in the US, the second year of medical school is when you start studying the pathology of disease and learn about all of these funny named syndromes and problems. Invariably at least one or two resonates with the reader and they feel instantly afflicted. This prompts further study (which is good) and further worry (which isn't).
What you described is pretty much everyone who doesn't go on to be a used car salesman or a politician. Figuring out the ins and outs of social contact is hard for most humans. People afflicted with autism / aspbergers are really hard stopped to the edge of human contact. Yes, at a molecular level, some of us who don't deal with the social graces as well as others probably have some similarities, but pretty much all of health and disease lies along a continuum, We often make fairly arbitrary distinctions because it helps pigeon hole things and humans like to do that... But it's not always representative of the issue.
Shifting thresholds (Score:5, Insightful)
I suspect a lot of diagnoses concern borderline cases, that would previously not have been counted as verified autism - so before, people would be classified as "odd" or "geeky" but not as someone who carries a mental disability.
The same thing happened with depression. In the old days, depression was virtually unheard of, aside from extreme cases of people constantly trying to take their own lives. Nowadays, everybody and their dog gets depressed at some point during the year, and prescribed medicine.
Re:Shifting thresholds (Score:5, Funny)
Nowadays, everybody and their dog gets depressed at some point during the year, and prescribed medicine.
Sadly this is literally true [webmd.com]
Re:Shifting thresholds (Score:5, Insightful)
Maybe he's just sad that dogs get sad.
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Maybe he's just sad that dogs get sad.
Well that is sad but I was mainly thinking its sad that many dogs will be medicated for no valid reason - as I think most of these cases will be just a diagnosis for cash.
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With a cat you just wouldn't know or much less care.
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The same thing happened with depression. In the old days, depression was virtually unheard of, aside from extreme cases of people constantly trying to take their own lives. Nowadays, everybody and their dog gets depressed at some point during the year, and prescribed medicine.
How does this get modded as insightful? People feeling depressed and clinical depression are two very different things. Its easy to laugh off and make glib comments. It doesn't make them true though.
When were these old days of which you speak? Winston Churchill, yes that one, suffered from depression which he called his "Black Dog". Greater access to healthcare, and better trained physicians, will always increased apparent incidence of mental conditions. Is it right that in previous times these people would
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Your post is correct, but the OP is making a valid (if inelegantly communicated) point. Depression is hugely over diagnosed and treated, [jhsph.edu] particularly in the US.
Actual clinical depression is a serious disorder and of course has existed throughout history. However, currently about a quarter of women in the US between 40 and 50 are on antidepressant drugs at any one time, and about 10% of all Americans over 12. These people aren't all suffering from major depressive disorder. Many of them don't meet any of
Also: More than half of women have been diagnosed (Score:3)
Actual clinical depression is a serious disorder and of course has existed throughout history. However, currently about a quarter of women in the US between 40 and 50 are on antidepressant drugs at any one time, and about 10% of all Americans over 12.
In particular, (I've heard that) more than 50% of adult women in the US have been treated for depression at least once in their lives.
This is a source of one of the major pushbacks against gun control proposals that ban people who have seen a shrink from ever h
Re:Shifting thresholds (Score:5, Interesting)
Really? Ever see someone in their manic mode of manic depression? I have a sister with this as well as schizophrenia because many mental disorders rarely come alone, it is something like a smorgasbord. Anyhow, one evening she took exception to the wall-to-wall carpeting in Ma's bedroom while Ma was in the hospital. She ripped up that carpeting in the bedroom and an adjacent room, moving several pieces of large furniture out of the way to do it. I asked her how long it took, it took a few hours in the evening and a few the following morning.
She ripped up the carpeting with her bare hands. That's what can happen when she doesn't take her meds. And that was during a manic episode, the schizophrenic episodes are stranger.
Unless you've lived with someone with mental illness, you don't know squat about it.
Re:Shifting thresholds (Score:4, Insightful)
The important thing for people to understand about real, correctly diagnosed, psychiatric conditions it that they're physical in nature; they're due to chemical problems in the brain. You can no more overcome them with willpower than you can "walk off" a broken leg.
For all we like to think of the mind as being software, the fact is that brain chemistry has deep and profound effects on how we think. Our ability to "steer" our thought processes, to focus or stop obsessing, to synthesize our conscious perception of the world around us from actual sense data and not from fiction, all that sort of thing requires specific neuron chemistry. If the raw materials aren't there, the brain goes off the rails in pretty extreme ways.
Galvanises? (Score:5, Funny)
At last, the real culprit is revealed: zinc.
Endo/Entero-symbionts (Score:2)
My bet:
* Endo/entero-symbiotic microorganisms
Known to alter behaviour in insects and small mammals
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Yeah, that's known to alter behavior. However, neurologists can see inside brains now. [youtube.com] So, we can see the fucking problems, we don't have to guess. Now, we can name this type of problem something, and if there's some other chemical or microorganism, etc. THAT'S SOMETHING ELSE. It's not a "spectrum" of shit if the underlying causes are fundamentally different.
So, if we start out noticing a behavior, and then go looking for a lot similar behaviors and then call them all a common diagnoses, like Autism "Sp
Autism is the new ADD (Score:5, Insightful)
Not saying that all or even most of the diagnoses of autism are false positives, but when you're living in a world where human communities are dwindling and become more insular - so there is less direct social engagement, extended families are spread across continents - so this core social unit is less dynamic and extensive, and people spend more and more time in front of screens - at work and at home, this sort of result is not overly surprising. Shit, when did the first iPhone come out? Mid 2007? Coincidence? iThink not.
Increased screening sensitivity is probably playing a big factor as well: "Tommy seems rather introverted and shuns the company of others. He also throws a huge tantrum when we take away the tablet with the toons on it. Probably autism." I'm not saying this is due to negligent parenting, but when there is an obvious diagnosis that fits the symptoms, why look any further? Again, these are the marginal cases which are sufficiently prevalent to cause this spike.
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so there is less direct social engagement, extended families are spread across continents - so this core social unit is less dynamic and extensive, and people spend more and more time in front of screens
Hmm, don't the core traits of autistic spectrum disorders manifest themselves within the few first years of life? You'll have hard time trying to convince me that "spending more time in front of screens" applies to toddlers. That's where you probably where you ought to start if you're looking for the cause.
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Autism is early onset, autism spectrum disorders are less clear. It's not obvious whether this is because they are early-onset but the symptoms are subtler and harder to identify, or because they're distinct syndromes.
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Hmm, don't the core traits of autistic spectrum disorders manifest themselves within the few first years of life? You'll have hard time trying to convince me that "spending more time in front of screens" applies to toddlers. That's where you probably where you ought to start if you're looking for the cause.
Most toddlers I've seen in the past few years are far more adept at using a touchscreen than their grandparents. Again, my theory is that this spike is due to misdiagnoses rather than real cases. Some critical insight would be gained by looking at similar studies from other countries, assuming these exist.
Re:Autism is the new ADD (Score:4, Insightful)
It's not a theory, it's a wild conjecture. Where is your evidence for a rise in misdiagnosis?
Oh, I don't know - maybe the fact that this study is based in the US, which has a track record of "over-diagnosing" mental health disorders in children, such as ADHD ( http://www.cdc.gov/ncbddd/adhd... [cdc.gov], http://www.psychiatrictimes.co... [psychiatrictimes.com]).
Fool me once, shame on ... shame on you. Fool me... You can't get fooled again!
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You'll have hard time trying to convince me that "spending more time in front of screens" applies to toddlers.
You need to go outside more...
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The number of people I have seen who just plonk their kid down in front of the TV and stick the kids network on has risen dramatically in the past decade - and now you even see it when out in public, the number of toddler aged children in push chairs with an iPhone or iPad (or equivilent) mounted on a stand attached to the push chair continuously playing some kids show or other...
Interacting with children seems to be a huge issue these days, one most parents cant be bothered with.
That's a bit simplistic... (Score:5, Insightful)
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There is much, much more to the process of professional evaluation and diagnosis than what you describe. The process is a whole lot more rigorous than idle speculation.
Even so, do you really think this spike is 100% due to correct diagnoses? If not, how much? A 30% increase is huge. When you get that kind of shift in your results, your first question as a researcher should be: how did my methodology change? Easier said than done for psychiatric studies where human judgment playts such a key factor, but the burden is on the researchers to reexamine their experimental method in light of such a spike.
Re:That's a bit simplistic... (Score:5, Interesting)
There is much, much more to the process of professional evaluation and diagnosis than what you describe. The process is a whole lot more rigorous than idle speculation.
Sure it is. But that doesn't mean there can't be other things going on here.
Let me tell you a little story.
About a decade ago, I taught high school for a few years. First, I spent a few years in public schools, mostly middle class or lower middle class communities. The percentage of students I had who had diagnoses (mostly cognitive disorders or deficits) which would get classroom accommodations like additional time on tests, etc.? About 1 or 2%. A REALLY small number.
Then, the last year I taught high school, I taught in an elite private school which was one of those "feeder schools" to Ivy League colleges and such. The percentage of students with these accommodations and diagnoses? Roughly 15 to 20%. (I should be clear that there are some private schools known to cater to kids who have difficulties in normal public schools -- this was not that kind of school. You'd only tend to go here if you were rich and your parents wanted to get you into an elite college.)
Now, there are a couple potential explanations for this significant difference.
(1) The elite private school with rich kids had parents who had enough resources to devote to diagnosing obscure disorders and borderline cases, where the public school kids had to depend on an overworked school psychologist or something to note some problems.
(2) The more cynical explanation: The rich kids got extra time when they wanted it because the parents had the resources to find a psychologist who could find a vague or "flexible" diagnosis that would allow the kids to have a "leg up" on not only standard school assignments, but also things like standardized tests (extra time on the SAT, etc.). A number of these diagnoses are related to things that would put a kid somewhere on the autism "spectrum."
The second cynical explanation is not just idle speculation. It's been a documented trend, along with overprescription of drugs that have some cognitive benefit, which has received major media attention.
Honestly, I'm sure both of these explanations are true. But they both go a long way to explaining the continued rise in documented cognitive disorders -- and as more middle class parents learn about these things and want their kids tested (either because they legitimately see something wrong, or because they want to try to "game the system" like their richer peers), it's inevitable that the numbers will go up.
In recent years, I've been teaching at the college level, and I've seen similar trends. Kids at elite institutions are more likely to come in with lists of accommodations for extra time, etc. because of some obscure cognitive disorder, while kids at lesser universities usually only have these things when they are truly struggling.
I have a friend who is an educational psychologist, and when I asked her about my observations, she flat-out told me that many of the diagnoses I've seen for rich kids are used precisely to take advantage of the system, because they are more vague in terms of diagnostic criteria.
I should be clear that I also have some people in my family who have severe cognitive disorders, and I completely understand why parents fight at every level to get whatever help they can for their kids. But it's also clear that there are people taking advantage of this system, which is driving up diagnosis numbers, but also drawing resources away from kids who really need it. It's also created this bizarre system in education where your diagnosis determines whether you get "double time" or "time-and-a-half" or "time-and-a-quarter" or whatever for tests, including major standardized ones that can have significant impacts. How do we diagnose kids with that level of precision to determine exactly what "handicap" to give them, and how do we deal with rich parents who can "shop around" for a convenient diagnosis from a psychologist?
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As a parent of a 4 year old with Autism, I can safely say that you have no clue what you are talking about which is fine (hell I knew very little about it before having my daughter diagnosed at the age of 2). I do take issue when you make such idiotic comments as Autism is the new ADD. There's a difference between "throwing a huge tantrum" because a child had a toy, tablet whatever taken away and not having your child want to look at you, smile for pictures and be oblivious to everyone around him or her. I'
Re:Autism is the new ADD (Score:4, Insightful)
Since when did not knowing anything about a subject ever stop someone on Slashdot from having a strong opinion about it? Shit, if that were true, the comments sections would look like downtown Detroit.
Autism is not ever diagnosed because a kid has tantrums or is nerdy etc. The professionals know what they are doing.
Yeah, I'm going to take issue with this. I'm sorry about your daughter, but are you saying that professionals are somehow infallible, always getting it right? Come on!
You're right, I have no real expertise in the matter; however, as an ignorant schlub this won't stop me from forming an educated guess about it; and in the light of this study I will conjecture that one of the following is happening:
* Rates of autism have not changed in recent history, but the the diagnostic measures have - this may be due to improvement in methods, greater awareness in the mental health community, but possibly because - for whatever reason - doctors are more disposed to incorrectly diagnosing autism. It's not like this has never happened (http://www.ucdmc.ucdavis.edu/welcome/features/2013-2014/01/20140108_autism-22Q.html).
* Rates of autism are indeed on the rise, though a direct mechanism has yet to be discovered. This would be alarming to say the least.
I'm skeptical about the second case, because - Jenny McCarthy aside - no one has established a clear link connecting autism to anything. Most evidence points to problems arising during prenatal development (http://www.nejm.org/doi/full/10.1056/NEJMoa1307491), but as to what causes that, no one knows.
Education funding and excessive medicallisation (Score:5, Interesting)
Part of the problem in the UK (so may not be the same in the US) is that there is additional funding and support for kids with diagnoses like ASDs so there is a big incentive for schools and parents to push for it. It's driving a whole approach of medicalising behaviour. Kids who in the past would have been simply regarded as a bit unusual and who a teacher would have had to just cope with are now being given medical diagnoses and possibly additional help.
As discussed in the article what would be interesting to see is more detail on the distribution of ASD diagnoses, in terms of where they sit on the spectrum. If there is an increase the diagnosis of severe autism (the kids who would reasonably have been diagnose as autistic 30 years ago) then that would suggest that there is some environmental factor at work. If, on the other hand it's mostly high functioning and borderline then it seems likely to be mostly down to diagnosis.
While I'm very much in favour of education being better able to deal with kids' differences, I'm not sure medicalising it is the way to go.
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While I'm very much in favour of education being better able to deal with kids' differences, I'm not sure medicalising it is the way to go.
I completely agree with this - but more with those maybe cases. There will always be a bunch of kids with very clear and profound issues and who need a formal diagnosis to trigger appropriate support. It is those kids who go through the usual developmental issues but who have uninformed helicopter parents pushing clinical staff into providing treatment in some shape of form. It is not just school. What I think we do need in some cases is professional face slappers to bring people back to the real world and
Re:Education funding and excessive medicallisation (Score:5, Interesting)
My grandparents clearly had autism. It was never formally diagnosed. They had all sorts of interesting personality disorders (DSM!) and unhealthy destructive relationships.
My parents clearly had autism. It was never formally diagnosed. They have all sorts of interesting personality disorders (DSM) and unhealthy destructive relationships.
I clearly have autism. It was never formally diagnosed. My parents dealt with it by physical punishment. They hit me with wooden sticks so they wouldn't hurt their hands. I grew up really fucked up. Imagine being randomly beaten for reasons you do not and can not understand. I spent 2 decades clinically depressed, actively trying to kill myself. I know what arsenic tastes like. I know what it's like to hold a knife to my wrist, a gun to my head, and want, more than anything, to pull the trigger and end my pain and suffering. Sometimes you hold on for just another day. Sometimes for only a few more seconds of life. You know how a child's mind works? I used to wonder if I had already died, and already gone to hell, as I couldn't imagine anything worse.
I got out of that. I got help. I spent almost another 20 years in psychotherapy, putting the pieces of my mind back together again. Unlearning the self-destructive behaviors I had unconsciously accepted. Not an easy thing.
Today, I'm in my fifties. Today, my children have autism. It has been diagnosed. I have them seeing some of the best doctors in the country, right on the leading (bleeding) edge of medicine.
Today we understand how layers of the brain's neural structure do not develop properly in autistic kids. How autism has many causes. Some kids will respond to gluten free diets. Others to dairy free diets. There are blood tests that can pick up on the antigens, telling us which kids can be helped by such alterations. It's known that their gut (intestines) are leaking proteins, causing the immune reaction picked up by the blood tests. It's known that these proteins can bind to neural receptor sites, and how they can act exactly like narcotics.
Today it's known how still others kids have problems with nuts, with artificial sweeteners, or with artificial colors. There are a many dietary problems, and that's just the tip of the iceberg. Other kids have difficulties with heavy metals. Others have, well, the list of causes here goes on and on and on. Autism is a catch-all disease, describing symptoms with a great number of underlying causative factors.
Bottom line here is that there is a lot we can do to help these kids without fucking them up for life with depression or psychosis through abuse. If you don't deal with their problems, it is abuse. We assume control they do not possess. They can develop into great engineers, doctors, whatever. They're bright kids. Just different. They don't have to become monsters. We don't have to turn them into monsters!
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Re:Education funding and excessive medicallisation (Score:4, Interesting)
It's not that the problems are "cultural not medical", but that the cultural response exasperates the medical issue. Before my son was diagnosed, his principal convinced us that he was purposefully being defiant and disruptive. On the principal's suggestions, we had a regime of punishments put in place. My son's behavior got worse, not better. Once we got he diagnosis, we stopped those punishments immediately and put a program in place to help him based on our better knowledge of what was happening with him. (Unrelated note: That principal later threatened us when we tried to get an IEP because we "went over his head." Thankfully, he was removed albeit due to an unrelated scandal.)
So, yes, Autism is a medical condition (a developmental disorder) but a cultural mis-understanding of it and wrong responses to it can lead to the condition worsening. Thankfully, people are getting better informed about what Autism is. Unfortunately, not everyone is well informed and too many people make judgments about what Autism is based on little to no information/personal experience. (Sadly, judging by some of the comments here, there are many people on Slashdot who fall into that category. And I wasn't talking about the commenter I just replied to.)
Re:Education funding and excessive medicallisation (Score:5, Insightful)
There is a severely autistic girl who was thought to be completely incapable of social interaction and language use... until she went over to a computer and starting typing on it. Basically she was seen as severaly retarded based on in-person interaction, but with the use of electronics to communicate, she is now in gifted classes http://carlysvoice.com/home/ab... [carlysvoice.com]
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What does "medicalising" even mean? It sounds like a made-up pejorative to try to turn giving people drugs that may help them into some kind of bad thing. What evidence do you have in favour of your tacit assumption that basically we should not use science to try to help people, if it crosses some arbitrary line you've drawn in the sand regarding the use of various chemicals?
I'd rather make up the term "over-medicalising" to describe better where the problem starts. That happens when diagnosis starts to overreach and offers (=sells) help to people who are still well within the "normal spectrum".
Understanding that there is something like an "autistic spectrum" was indeed great progress. But we now need to learn (or rather re-learn) that there is also a "normal spectrum". And they may overlapp. Just think of that classical "eccentric" who may be deeper in his own private reality
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What does "medicalising" even mean?
It's when, rather than the system adapting to its population, the population are offered drugs that will change their behavior. If you choose not to take the drugs and remain a "disruptive individual", that frames you as someone who has made a choice to be disruptive, because you've been offered the "tools" you need to fit in.
People who use the term "medicalising" reject this view. They believe that if the system doesn't adapt to its population, that represents persecution. They frame the medical profess
Could it be food? (Score:4, Interesting)
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In two and a half weeks??? You had a very small belly then, I take it? Because it's pretty hard to lose even ten pounds in that time-frame without stopping eating altogether.
Putting the cart before the horse (Score:5, Insightful)
Jenny McCarthy knows ! (Score:2)
Of course, just why it would suddenly go up a the same time vaccination rates are at such a massive low that we're dealing with major outbreaks of formerly all but eradicated diseases I'm not sure but I'm certain that you could understand if you had her PHD (Pretty Hump of Distraction).
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Vaccination rates are at a "massive low"???
According to CDC, vaccination rates for MMR are about 90%, which is where they've been for the last couple decades.
As to "major outbreaks of all but eradicated diseases", the numbe
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When the number a decade ago was near-zero - 175 is massive, because it predicts that this years number will be much higher, it's the beginning of the breakdown of herd immunity.
Are you actually suggesting the the antivaxer (sorry, that's not politically correct - I mean the "pro-disease") movement has had zero impact on vaccination rates ? This should be news to the medical fraternity - you better inform them !
I have the answer! (Score:2)
I blame High Fructose Corn Syrup.
I would blame Obama, but that doesnt fit the same time window.
Re:I have the answer! (Score:4, Interesting)
I would blame Obama, but that doesnt fit the same time window.
That doesn't stop people.
A Third Of Louisiana Republicans Blame Obama For Hurricane Katrina Response Under Bush [washingtonpost.com]
(poll data here: http://www.scribd.com/doc/1619... [scribd.com] )
Reminds me of... (Score:2)
Women delaying birth (Score:2)
School aid (Score:5, Interesting)
So the neighbor kid was diagnosed with this... and I didn't want to irritate his parents by pointing out the obvious but that kids just obnoxious, there's nothing wrong with him. But oh well... then the school brought in a specialist for MY kid, and they determined that my kid was having trouble in school because he was bi-lingual. You see, my son was born in Africa and we adopted him when he was 2. The funny thing is, he never spoke their language. The only word he knew in his native language when we got him was "Abas" which means "Father" which he'd yell whenever he was afraid of something. I pointed this out to the school but they insisted. Being somewhat of a libertarian I objected to the school wasting money on a special program for him. Then they got nasty. I was trying to impede the progress of my child and it would not be tolerated. A week later the teacher had an assistant 2 days of the week provided by the state to handle her "Bi-lingual" class. Ah, it was all clear now... The school diagnoses disabilities to garner more aid, and more resources from state and federal agencies. They push parents to doctors they know will produce favorable diagnoses and use anything they can find in the childs background to get the result they want.
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I have a neighbor who has two autistic kids, or at least that is the diagnosis. I'm not sure its the proper one but there is definitely an issue. The mother did have the kids relatively late in the child bearing age range and the husband is in that upper band too. I don't doubt there could be something to this. All that said, I cringe at how much our society leans on the crutch of illnesses (especially psychological) to try to explain bad behavior or reasonable departure from the norm. Child behavior
Autism is too broad and other problems (Score:5, Insightful)
First of all, just going to say it again. The definition or classification "autism" is too broad. Different people under the classification have different ranges of impairment. It needs to be broken down. In one area, Asperger's, it once was and has since been blocked in with Autism Spectrum Disorder. Why? (perhaps part of the larger trend of tyring to label more people as "mentally incompetent" as a means of separating people from their rights?) I don't know.
But instead of creating a broad classification and diagnosis, there needs to be increased study into variants and ranges of disability. Some people are just fine and are a bit awkward while others are completely incapable of taking care of themselves. It's inaccurate to simply put it all under that one umbrella and treat things under a "common core" and ultimately unhealthy to do so.
But the complete and utter resistance to seeking out causes blows me away. If one in 68 children were missing limbs at birth, there would be an international outcry. But because the impairment isn't readily visible, people want to ignore it and especially many want to deny it even exists at all seeking to classify it as a "choice" or "behavior disorder." Those people seem to be incredibly selective of their understandings of the connections between the body and the mind. On one hand we all agree and understand that hormone and other chemical balances of the body and especially nutrition and the use of drugs have a profound effect on the mind. Yet at the same time, there is a set of people who want to believe something entirely different despite knowing what they surely already know. (We're magical spirit creatures inhabiting bodies... ignore the fact that taking chemicals can change how your spirit creature feels and acts. People seem immeasurably incapable of connecting the body and the mind.)
Why aren't we investigating more? Why?!
This problem definitely fits the definition of "epidemic" and yet somehow it doesn't warrant investigation and study? Is it because important business models will be threatened? I believe that will be of high likelihood. Some might think it's worse than that and I hope that's not it but there are documented and unclassified cases where out very own US government really and truly has done things to people -- horrible and terrible things. Sometimes it was intentionally and other times perhaps out of wilful ignorance. The question of intent is important, but we do have some basic facts we can at least point to:
1. The rate is high and climbing still.
2. The problem isn't being studied properly.
That's enough for now. It needs to be proven or disproven. There's no need to go any deeper than that at this point.
Bring on the armchair scientists (Score:5, Insightful)
How much poison do you eat? (Score:4, Insightful)
Let’s see rising levels of mercury in fish, arsenic in rice, methylbromide in bread, adding fluoride [*] to drinking water ON PURPOSE, BPA in plastic food containers, volatile PBDE flame retardant in yout furniture, VCOs in your paint and building materials, trans fats. I can go on and on and on.
Besides eating a diet excessively high in carbs and low in other nutrients, we’re poisoning the shit out of ourselves. And you’re surprised that some people aren’t handling it well?
[*] Fluoridation is controvercial, the target of commie conspiracy theories, etc. In reality, it’s shown to have a substantial positive impact on tooth development in children, it’s dirt cheap, and kills many pathogens in water. However, it’s also strongly linked with lowered IQs and thyroid disease. It’s basically poison. If you’re smart, you’ll get a fluoride filter for your water and give your kids high doses of iodine instead, which has the same effect on teeth, the same disinfectant properties, and is an essential mineral.
Autism and hypothyroid (Score:5, Interesting)
Re:Yeah but (Score:4, Funny)
1 in 10 is not a disorder.
It's a harem.
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Ohh, how I wish it was something like 9 out of 10. Or better 99 out of a 100. Can you imagine how many women will be left "unattended"? Can you?
I never understood the hatred towards gay men. It means more women for the rest of us, you sillies! Now, lesbians are another matter entirely...yet heterosexual males looooove lesbians [or at least lesbian porn] but hate gays. So weird...
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Um, no. It wouldn't.
http://tallguywrites.livejourn... [livejournal.com]
Re:Or endless 'vaccinations' (Score:5, Informative)
Re:Or endless 'vaccinations' (Score:4, Insightful)
Secondly, if there were a link, then we should expect to be able to observe it thanks to the activity of celebrity morons like Jenny McCarthy. If vaccination or the minute traces of an antimicrobial called thimerosal (a mercury compound) used in some vaccines were the cause of autism then surely it should observable in the rates of autism? After the scare, less people vaccinated and manufacturers removed thimerosal from childhood vaccines so there should have been an observable effect on autism rates. There wasn't.
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Not to mention that that single flawed study wasn't even anti-vaccine itself. Wakefield's original intentions were to sell his own MMR replacement vaccines so he tried branding the MMR as causing vaccines. Had he gotten his way, the MMR would have been banned, everyone would have used his replacement vaccines, and he would have gotten very rich.
Instead, he has had his medical license revoked but he came to America where he is practicing some highly suspect procedures on people and is hailed as a hero by a
Re:Or endless 'vaccinations' (Score:4, Insightful)
Or maybe, just maybe it's a combination of factors, each bearing its own small risk and in conjunction increasing the rate. Or maybe it's simply better and more sensitive diagnoses of the condition.
One thing is certain. The link between vaccination and autism has been extensively searched for and there isn't one.
Re: Clearly vaccination is to blame! (Score:5, Insightful)
Re: Clearly vaccination is to blame! (Score:4, Insightful)
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Why are people so quick to say vaccines are connected? Wait until some weirdo declares that soap causes autism, and see how the world behaves even after the claim is debunked times over. Just like with vaccines. Enjoy the smell of the (literally) unwashed masses then.
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If you don't use soap ever, you probably are human contact free too... although what did they use before soap was made?
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Sure.. I am going to believe a scam
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They don't care either. My Aunt went to the Hospital with dizziness, the last time she went they thought it may be a Stroke and treated her for it. This time a different Doctor was there and was more concerned with the Television show he was watching and sent her home without treatment. I guess the Television show was more important, perhaps he should of chosen a different profession if he doesn't have an interest in doing his Job.
I myself have been suffering from Heart related issues for quite a many years
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Not knowing what causes autism and yet knowing beyond reasonable doubt that vaccines don't is entirely consistent with all the medical evidence. Confusing these facts does not demonstrate that medical science is wrong.
Re: Clearly vaccination is to blame! (Score:5, Informative)
Doctors will NEVER admit they're wrong.
And you're right, they don't know what causes it, why are they so quick to say the vaccines aren't connected?
"Are so quick"? Several different Universities have done research on the subject over many years and all came to the same conclusion, Autism rates are the same in people who get vaccines as people who don't.
Re: Clearly vaccination is to blame! (Score:5, Informative)
Is this a serious question? There was one study which suggested a link (Wakefield). This study's data was fabricated, and was later retracted Wakefield's license was revoked. There were then a flurry of studies showing no link between vaccines and autism. You really think that's "quick to say"?
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1) They're very quick to play hero when the other doctor is wrong
2) a) They weren't "quick to say" it, they produced an enormous body of evidence.
2) b) The moon disappears. You're blamed. I'm pretty sure that you can show you're not responsible without knowing who the actual culprit is.
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Yep. There's a strong correlation between being in a car and having a car accident but we're not trying to ban cars, are we?
PS: http://tallguywrites.livejourn... [livejournal.com]