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Comments: 847 +-   Fertility Clinic Bows To Pressure, Nixes Eye- and Hair-Color Screening on Tuesday June 16, @10:24AM

Posted by timothy on Tuesday June 16, @10:24AM
from the gets-pretty-creepy-doesn't-it? dept.
biotech
medicine
destinyland writes "A fertility service in L.A. and New York screens embryos for breast cancer, cystic fibrosis, and 70 other diseases — and lets couples pick the sex of their babies. But when their pre-implantation diagnostic services began including the baby's eye and hair color, even the Pope objected — and the Great Designer Baby Controversy began. '[W]e cannot escape the fact that science is moving forward,' the fertility service explained — before capitulating to pressure to eliminate the eye and hair color screenings."
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  • by Anonymous Coward on Tuesday June 16, @10:26AM (#28348041)

    It's when fertility clinics start to offer to change the hair or eye color (or other traits) of a baby to be.

    I guess I'm just old fashioned.

    • by Anonymous Coward on Tuesday June 16, @10:44AM (#28348269)
      If the human race goes extinct, it certainly won't be because we didn't reproduce enough. So really, what's the point of fertility clinics? As in, why don't people just adopt the already-existing baby that meets whatever "criteria" they have instead of doing all of this?
      • Because that wouldn't be propagating ones own genes.

        • You mean the same genes that are making it really hard for you to have children?

          Let's think about this for a moment....

          • People have cared about the survival of their genes since the beginning of time. It's why our species still exists.
            • No, people have cared about getting laid since the beginning of time. Survival of our genes is just a side effect.

              • Steven Hawkings probably would have been screened out of existence

                Actually Stephen Hawking suffers from adult-onset ALS [wikipedia.org], so he likely would not have been screened out of existence even if the technology existed ... especially since no definitive cause [wikipedia.org] for ALS has been established, though DNA defects have not been ruled out.

              • It seems to me possible that if people select their offspring intentionally based on genetic information, then we will tend to have less diversity of outcomes, which will impact evolution,

                CORRECTAMUNDO!!!

                Evolution is defined as natural selection of random mutations. It's surprising just how many geeks, who should be very familiar with what "random" means, will still advocate the idea of genetic selection and manipulation of offspring. I personally think it's from reading too many sci-fi novels in which "genetic manipulation" results in supermen or the like.

                Once our society begins selecting and/or rejecting offspring based on their genes, or we begin manipulating our genetic codes, evolution stops. We won't have moved into another kind of evolution. We won't be make our evolution more efficient. We'll have stopped evolving altogether, at least in the only way we understand the evolution of organism.

                In technical terms, we will have moved humanity from a local random search to a heuristics based local search. The difference cannot be emphasized enough. Here we have a local random search for better organisms that has delivered incredible(literally to some) results over millions of years. Yet people are proposing replacing that system with heuristics that have no other qualification other than certain people think they will lead to improvement. Genetic manipulation advocates fail Optimisation 101.

                Some will argue that parents have the right to procreate in any way they choose. But as I've advocated before, rights do not scale up. Just because it seems right that one person should be able to do something, you cannot just inductively apply that logic to the entire population. And when you grant a right, that's exactly who you grant it to. Everybody.

                I'd liken genetic manipulation to interbreeding. Some people think it should be moral to marry your cousin or even sibling. They can even make a good case for why they should be entitled to do so. But if you scaled that right up to the entire populations, we'd all end up inbred, sickly and probably mentally retarded within a hundred or so years. Genetic selection promises much the same outcome, except genetic homogeneity will occur on a population wide scale.

                Inductively scaling procreation rights up can easily lead us to a tall, trim, blue eyed, blond haired, heap of flu-ridden corpses. The very fact that this clinic offered such frivolities as eye and hair colour screening shows that this is exactly what will happen if we replace proven randomness with such vapid heuristics.

                • You couldn't be more wrong or short sighted.

                  "Once our society begins selecting and/or rejecting offspring based on their genes, or we begin manipulating our genetic codes, evolution stops."

                  No it doesn't, go back and study it again.

                  "We won't have moved into another kind of evolution. "
                  That shows a serious lack of understanding of evolution.
                  It is not a ladder, or a tree or a chain, it's more of a bush.

                  Your whole premise is flawed becasue you do not understand what you are talking about and are applying cross field analogy.

                  Epic. Fail.

                • by tbannist (230135) on Tuesday June 16, @12:49PM (#28350537)

                  Your rant really makes no sense at all.

                  You see evolution is actually defined as "the change in the genetic material of a population of organisms from one generation to the next". The methods of change include random mutation, and natural selection but are not limited to it by any means. Because you are not using the proper definition of evolution, once we as (supposedly) intelligent beings begin modifying our own genetic code, evolution does not, in fact, stop. Rather human evolution changes from a random process to a directed process.

                  It is true that we could stop evolution, if we chose to do so. However, your assumption that the inevitable result is an end to change in the human genome suffers from some very large flaws. People actually have differing preferences, I'm sure there are many, many people who do not desire their children to be blue-eyed and blond Germans. If you were correct, we could reasonably expect every child to be called "Hans" or "Gretta" and frankly, even massively popular names never reach a level of ubiquity where everyone has the same name.

                  Furthermore, anyone with even the remotest trace of training in search algorithms can tell you that randomly selecting your results is a terrible search algorithm. It's slow, it's inefficient, and it's unbounded. Sure, eventually the correct result should be returned, but the heat death of the universe might occur first. That might be why it took about 3.7 billion years to produce us and we might represent a "lucky" search.

                  As far as rights go, it is an interesting question. However, you shouldn't confuse genetic tailoring with genetic cloning. At the current level parents are only able to choose between a selection of viable embryos. They are able to choose from a variety of outcomes they could have naturally produced. Even if we could rewrite the genetic code of an embryo it seems unlikely that we would change everything to the degree where we'd produce the human monoculture you dread so much.

                  Frankly, giving the current prevalence of capitalism, it seems unlikely that most people would be able to afford the wholesale genetic rewriting of their children for the sake of vanity. So given that our unequal distribution of wealth is a problem unlikely to disappear at any point in the foreseeable future and that companies will almost certainly charge for the service of changing your offspring's DNA, you will, most likely, find that distribution of wealth enough to create a heterogeneous genetic population before we consider religious differences, cultural differences, personal preferences, aesthetics, trends, and fashion. And let's not forget that are significant populations who would likely choose not to engage in genetic engineering.

                  The fact that the clinic in question offered such frivolities as eye and hair colour screening shows people are interested in how their children will look. It has nothing to do with any of your other points, at least not without some type of information on what the parents who were allowed to screen their embryos chose. If you have some evidence to show that they all chose Nordic features, please do provide it.

                  In closing, you keep using that word "heuristics", I do not think it means what you think it means. A "vapid heuristic" would, in all honestly, best describe random mutation, not human genetic engineering.

        • by Seumas (6865) on Tuesday June 16, @11:10AM (#28348669)

          Which is so hypocritical that it's absurd. Parents foist themselves and their children on the world and then try to persuade us that being a parent equates one to being a saint and that there is nothing more altruistic than xeroxing yourself a few times.

          Yet they can't be bothered to do the right thing and, if they absolutely must have a diaper to change or a college tuition to pay, do it for some poor parentless soul out there that truly needs it *now*.

          The hypocrisy of such people is simply astounding.

          • Which is so hypocritical that it's absurd. Parents foist themselves and their children on the world and then try to persuade us that being a parent equates one to being a saint and that there is nothing more altruistic than xeroxing yourself a few times.

            The ready answer to this line of reasoning is of course: Aren't you glad your parents didn't think the way you do?

            That chestnut aside, it's now considered hypocritical to want to fulfill one of the most fundamental biological imperatives on earth? That's a scary thought. What other fundamentally human drives would you like to see renounced in order to make the world a better place?

            I'm not sure anyone here (other than you, in your haste to set up a straw man) is claiming that parents, by virtue of being parents, are candidates for sainthood. The mere fact that so many kids are abandoned, as you alluded to, seems to indicate that's not necessarily the case. A lot of people who elect to have children do work hard to raise them well, though, and I tend to think on balance that's a good thing for everyone.

            I'm also not sure there's anything inherently more virtuous about caring for someone else's child than for your own, as you seem to suggest.

            You must be using some definition of the word "hypocritical" that I'm not familiar with.

    • It's when fertility clinics start to offer to change the hair or eye color (or other traits) of a baby to be.

      That's what bugs you? Because that's what they are doing... except much less efficiently. The clinic will create, say, a dozen embryos, and then test each of them -- the ones with the undesirable traits are then offed, and the good ones implanted. Sure, it reeks of eugenics more than a little bit.

      But I think it's a little odd that you don't mind the eugenics, but you do mind the efficient process to make the eugenics work.

      • Re:Why the Pope? (Score:5, Insightful)

        by Anonymous Psychopath (18031) on Tuesday June 16, @12:30PM (#28350159) Homepage

        "even the Pope objected"

        Is it surprising that the Pope objected? He's very conservative, and doesn't even approve of contraception for people with HIV. Does he approve of IV fertilisation at all? If god wants you to have a disabled kid...

        The Pope has referred to IVF as an "abomination", so no, he does not approve of IVF at all, designer eyes or no.

        Someday I'll tell my daughter that she owes her existence, in part, to the fact that we aren't Catholic.

  • I don't get it... (Score:5, Interesting)

    by cayenne8 (626475) on Tuesday June 16, @10:27AM (#28348055) Homepage Journal
    What's wrong with trying to get the eye color or hair color you want? What is the difference with that and picking the sex?

    I mean, if you can get just the kid you want...why not? What are the objections? Hell, when they can start letting you pick if you kid is going to be smart and/or athletic...are they gonna can that choice too?

    • by ptbarnett (159784) on Tuesday June 16, @10:44AM (#28348277)

      What's wrong with trying to get the eye color or hair color you want? What is the difference with that and picking the sex?

      I'm not sure I get it either. As a subsequent poster points out, it's screening, not "designing". Couples are choosing among existing embryos.

      Screening has been going on for millions of years. Humans have always been able to choose their mates based on visible criteria like hair color, eye color, athletic ability, etc. Why is screening acceptable for invisible traits (like propensity for cancer and other genetic predispositions), but not for visible traits?

    • skin color and such to come down the pike.

      Of course, if they could prove that sexual preference is genetic I believe we will see some real outrage with "We can guarantee your baby will NOT be gay"

    • Re:I don't get it... (Score:4, Interesting)

      by smooth wombat (796938) on Tuesday June 16, @10:49AM (#28348339) Homepage Journal
      Hell, when they can start letting you pick if you kid is going to be smart and/or athletic...are they gonna can that choice too?

      Most likely, it reminds people of at least one country where the government wanted a specific type of person.* That, and if someone didn't like the eye/hair color, they would destroy the blob of cells which some people consider to be a person. And we all know the Pope's stand on this subject.

      As far as picking the sex, there are numerous countries where a male child is wanted and if it's a girl, it is killed or sold. This of course has a distinct downside. See this story [cbsnews.com] for tidbits of the situation.

      *Funny how those who suffered the most are now demanding their own country be person specific with no "mixed blood".
    • by CodeBuster (516420) on Tuesday June 16, @11:06AM (#28348603)
      From what I understand, the principal objection of many people who are opposed to this sort of selection is that otherwise viable fertilized embryos, which do not meet the selection criteria, are discarded during the process. So, depending upon how one answers the "when does life begin?" question and the views one takes on the related issue of Abortion this sort of selection and discarding is either a choice like many others that parents make or murder; take your pick.
  • lawsuit (Score:5, Funny)

    by SoupGuru (723634) on Tuesday June 16, @10:29AM (#28348075)

    Would you have been able to sue them if your baby had blond hair when you wanted a brunette?

    "No honey, of course mommy and daddy love you just the way you are... never mind the settlement we got because your hair color is wrong. It paid for all this dye!"

  • by Icarus1919 (802533) on Tuesday June 16, @10:29AM (#28348081)
    On the one hand, this is pre-implantation and thus does not require the abortion of a fetus - no harm no foul, right?. One the other hand, it could easily be argued that one is playing god when you begin screening embryos for superficial traits.

    Of course, if you choose to make the second argument, then one would also be playing god when embryos are screened for diseases, and thus should be disallowed as well.
    • by svendsen (1029716) on Tuesday June 16, @10:33AM (#28348127)
      I'd go even further and say any medical procedure, drug, etc. could be considered playing god. Sorry Timmy you got TB and are going to die, yes we could give you some pills to save you but that is playing god.

      Personally I don't want some religion to tell me what medical procedures I can/cannot have because they think their holy book would approve/disapprove.
      • What if its a government book that states you cannot have procedure X because you don't requirements Y, or Z? Or, you can have it, but not until political grouping A and B have sufficient opportunities first?

        Religion or bureaucracy, does it really matter if the end result is the same?

        The difference between religious and government rules is that the later is enforced at the point of a gun

      • I'd go even further and say any medical procedure, drug, etc. could be considered playing god. Sorry Timmy you got TB and are going to die, yes we could give you some pills to save you but that is playing god.

        Personally I don't want some religion to tell me what medical procedures I can/cannot have because they think their holy book would approve/disapprove.

        Yawn, bringing up medical procedures and drugs is a straw man here. The issue the crazy religious folk have with this is one of life. When you administer the TB drug, you are not stopping life. When you fail to implant a fertilized egg, that is a life that was created that will never become a human being.

        It's a slippery slope. If it's ok to determine whether the life lives or dies when it doesn't have a brain, then maybe it's ok to determine whether it lives or dies when it has a brain but isn't on the same level of consciousness as us (partial birth abortion, AKA murdering the baby before it's halfway out of the mother in the birthing process [-1 flamebait/troll/overrated for saying that right there!]), and so then maybe it's ok to determine whether a life lives or it dies if the majority say its future is not worth keeping it alive (forced euthanasia); and finally then it's ok for me to determine whether something lives or it dies simply because that is how I prefer it and after all I know what is better for it.

        If you don't value life from the start, then you cannot somehow place more value on that life as it matures without being either inconsistent, or elitist, or both. The societal implications of not valuing the full life are drastic, and it is for our own conscience's good (and the future of our world) if we choose to value life through and through.

    • Except there is no god, so you can't play him. Once more, religion gets in the way of science.
      Imagine all the advances in science and medicine if we could get religion out of the way.

      • This really doesn't seem to be about religion to me.

        I have 2 children. I love them dearly, and would never change anything about them. Part of the thrill of parenting, is the gamble about what kind of child you will end up with. To be able to choose the traits of your children, seems to make it all a bit superficial to me. Why not just grow them in a test tube?

        Hell, why not just make baby farms as described in the Matrix? If we're going to take the gamble out of genetics, whats left for us?

        As far as "Playing god" or whatever name you want to give it, "God" in this instance does not neccesarily refer to any given diety, but simply refers to the unknown force that normally determines the traits of your child.

        I believe that there are forces in this world that we do not understand, that we should not understand, and that we should not meddle with because we don't understand them. Whether the decry came from the pope himself, or some guy living on the streets in new york, the message is still the same. By letting people choose their babies traits, we are taking away something that is profound.

        When my first child was born, the first thing the nurse said to me was "Her eyes are brown... that never happens". I would not trade that moment for anything in the world.

      • Except there is no god, so you can't play him.

        Nonsense. By acting as a god, you play god, even if you don't think any gods exist. You can play Satan too if you wished to. Or Sauron for that matter. The absence of a real god just means there's nobody to strike you down in the afterlife for your hubris.

        There is still a valuable ethical lesson to take away from the concept. Even atheist scientists can recognize this. The point is, we are not omniscient, and messing with things we don't fully understand can have disastrous consequences. The humility "don't play god" suggests you should have should also inspire caution and careful consideration of what you are doing, and this is a good thing.

        Imagine all the advances in science and medicine if we could get religion out of the way.

        Is religion blocking science all around the world, or is the minor but present advances made by other countries while the U.S. turned away from science in the last decade supposed to be so impressive that it is clear religion is leading us back to the dark ages?

        • by RDW (41497) on Tuesday June 16, @11:26AM (#28349001)

          'By acting as a god, you play god, even if you don't think any gods exist. You can play Satan too if you wished to. Or Sauron for that matter.'

          At least you can always tell when the parents have played Sauron ('The Eye was rimmed with fire, but was itself glazed, yellow as a cat's, watchful and intent, and the black slit of its pupil opened on a pit, a window into nothing' - this is never a good look, and little Pharazon will be mercilessly bullied at school). Don't even ask about the hair colour...

      • Once more, religion gets in the way of science. Imagine all the advances in science and medicine if we could get religion out of the way.

        Historically speaking, the Church (Galileo notwithstanding!) and Islam during the medieval period played a very large part in encouraging the development of science, medicine, and the arts. It varied by time period and region, but the link can't be denied.

        Second, one thing that confuses me about these sorts of statements is this - presumably, you think religion is just some nonsense that stupid people latch on to. But even if you get rid of religion, people are still going to be stupid. What makes you think that these stupid people won't find something else to latch on to that has the same sort of negative effects as religion? In fact, getting rid of religion might leave a vacuum that could be filled by something worse...

    • Just screen out the religion gene while you are at it.
  • by nasor (690345) on Tuesday June 16, @10:32AM (#28348105)
    There seems to me to be a difference between "designing" a baby with genetic engineering or some such vs. simply screening a bunch of fertilized eggs and selecting the one you want. But of course, if the media called it "screening" rather than "designing," people wouldn't get nearly as worked up about it - and they know this, so they go with the more provocative language.
    • Re: (Score:3, Insightful)

      I don't think "designer" in this context is supposed to imply how you get the custom-made baby; I don't think it's that technical. I think it's more intended in a fashion sense, like "designer jeans". The implication is that it is something well-off families will do in order to get the "right" kind of baby, rather than grabbing something off the rack at the thrift store and settling for what you get.

      Whether you modify the genes of a single embryo to get red hair and blue eyes, or select from thousands of

  • and is unfortunately still prevalent in india, china, and korea, and immigrant communities from india, china, and korea

    http://www.nytimes.com/2009/06/15/nyregion/15babies.html [nytimes.com]

    they should outlaw sex selection. an absolutely disgusting practice

  • by Audiophyle (593650) on Tuesday June 16, @10:38AM (#28348195)
    Do they allow you choose whether the baby will have red irises, pre-painted black fingernails, a perm that needs no hair spray, and "Whitesnake" pre-tattooed on its chest?
  • by keytoe (91531) on Tuesday June 16, @10:43AM (#28348263) Homepage

    Well, I've always wondered where the line would be drawn, and it's apparently at eye and hair color. To sum up, designing a baby to be resistant to over 70 diseases is cool - and designing a baby to be a particular sex is also cool. But choosing hair color or eye color, that goes to far.

    If someone didn't draw the line for me, I'd never know where it goes. I've never been good at placing arbitrary restrictions on things I don't understand, so thank God for the Pope.

  • Yes, there may not be any holding back the tide, but genetic "screening", "designing", or whatever you want to call it has a real danger of helping create even more of a class-based society, this one even more difficult for individuals to breach.

    Keep in mind this procedure will only available to those who can afford it.

    Want to grow up to become an athlete? Sorry, your parents couldn't afford to select genes that predispose you to becoming tall / strong / better cardiovascular function.

    Want to grow up to become a model? Sorry, your parents couldn't afford to give you a slender physique, blond, and blue eyes.

    Want health insurance? Sure, but it's going to be more expensive because your parents couldn't afford to eliminate your risk of ALS.

    The challenging part is that yeah, if I have the choice to prevent my future kids from developing life-shortening diseases, I've got to do it.

    Tough ethical choices ahead of us, imho.
    • >The challenging part is that yeah, if I have the choice to prevent my future kids from developing life-shortening diseases, I've got to do it.

      So that's the problem, then, isn't it: what counts as life-shortening diseases?
      There's a correlation between being left-handed and dying of accidents. So you'd want to select for a right-handed kid.
      There's a correlation between height and income: tall people make more. There's a correlation between income and average lifespan. So you'd want to have a tall right-handed kid.
      You can see where this is going: if you want to, you can justify almost any selection criterion as being life-extending, or at least life-enhancing.
      There's no good line to draw.
    • by immakiku (777365) on Tuesday June 16, @10:33AM (#28348117)

      Kind of off-topic: but I think we're going down a slippery slope when we start screening DNA. It works against the process of evolution. What if there's a new fatal disease that only people with the breast cancer trait are equipped to fight?

      Also Gattaca: society could expect a certain baseline of traits for what is "human". So people who don't meet that could be considered disabled, or worse.

      • by celtic_hackr (579828) on Tuesday June 16, @11:30AM (#28349047) Journal
        God, I hate that euphemism. Slippery slope. Get real people. Everyone already screens for DNA traits. Usually, though, people use secondary evidential characteristics rather than actual scientific DNA traits. I choose the DNA traits for my child. I choose someone who only had blond and red alleles for hair color and blue and green alleles for eye color. I chose the shape of the nose, the skeletal build, intelligence, etc. Ok so not all of my criteria were based on definable genes, but some were. I wound up with a blue-eyed, strawberry blonde, average height, above average intellect child. It's stupid to get upset over choosing eye and hair color.

        All this means is that the new questionnaires will include questions like what color is your hair and that of your parents and siblings. Ditto on eye color.
        Duh.

        The people who want to choose eye color will still be able to, only not quite as foolproof, and the clinics get the DNAnazis off their back.

        I totally get wanting to choose an eye and hair color that matches at least one of the parents.
            • by ShieldW0lf (601553) on Tuesday June 16, @11:39AM (#28349205) Journal
              Is "natural selection" even happening anymore in humans? When we were living in caves, and a baby was born with a major physical or mental defect, that baby was not able, or even permitted, to survive. Now, due to our increased technology and compassion, we can and will keep almost any baby alive by almost any means. Not that that is a bad thing, but i am stressing that there is no real natural selection happening in humans anymore.

              We're selecting for a stronger motherhood instinct. Those that don't have it take birth control, and their lines go extinct. We're also selecting against logic and attention span. Those that have it choose education over family, and their lines go extinct. Any human characteristic that leads a person in this society to participate in "planned parenthood" is being winnowed out of our gene pool. We're selecting in favour of passionate people who have a lack of self control and rebel against the system.
            • by CyberLord Seven (525173) on Tuesday June 16, @11:50AM (#28349421)
              Your post reminds me of a discussion in my genetics class. We were discussing deer populations and the class had all assumed that only the biggest and strongest would pass on their genes. We were then told to not discount the sneaky little bastard who knocked up one of the does while the two big guys were fighting. :)
      • by Anonymous Coward on Tuesday June 16, @11:00AM (#28348493)

        Are there any records of (other) animals in nature, namely mothers, culling off her weaker children? Here are three examples.

        Askmen Top 10 Bad Animal Kingdom Mothers [askmen.com]

        Lioness:

        Any cubs of less than 2 years old are killed by the male to stop any future rivals challenging him for the pride, and also to encourage the lionesses to go into heat, allowing him to begin his own dynasty. The lionesses allow this to happen -- a cruel edge to their mothering nature.

        Black Bears:

        Black bears like to have litters of two or three cubs, as it takes a similar amount of effort to raise one cub as it does three. Because of this, it has been documented that if a black bear gives birth to just one cub, she will sometimes simply abandon it and will hope for a larger litter the following year. Unlike many animals that may abandon young which are sick or weak, the bear will abandon the youngster simply for being on its own.

        African Black Eagle:

        The African Black Eagle usually lays two eggs, although one is generally no more than an insurance policy. The idea of an insurance policy is quite common in the animal kingdom, but it is the manner in which the unwanted young is disposed of which is particularly shocking. The mother will feed only one chick, and as it grows stronger it will peck its weaker sibling to death. What is especially gruesome about this is that the mother will look on impassively as her youngster is dispatched.

        In hindsight, aborting a potential human in the womb seems a lot less brutal.

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